So the attack of sciatica that made sight-seeing in Rome a little tricky turned out not to be sciatica at all but pain resulting from a lesion. A lesion caused by the spread of the giant cell tumour that isn’t meant to spread anywhere, let alone to the pelvis of my so-called “good” side. And which didn’t show up in the last scan. Nurse Jackie and I received the news in rather stunned silence. I asked a few questions in a voice that seemed to be coming from a very, very long way away; mainly whether there were any treatment options (unfortunately, no) and whether I’d be around to help Seb with his UCAS form for nursing, and get to Matron Anna’s graduation next July (hopefully, yes).
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September 12, 2013 at 9:06 pm
Oh gosh Sue, that is a lot of a bugger. I’m so sorry. Don’t know what else to say, other than I hope you do get to Anna’s graduation, and that you get to do a whole lot more beyond that. Sending you humongous hugs! xxxx
September 13, 2013 at 9:59 am
Hi Lulu – I have lots of other things on my to do list which I hope to write about – so watch this space! x
September 12, 2013 at 9:15 pm
Sue you are just wonderful and God willing you will get to Anna’s graduation
and certainly be there to help Seb with his UCAS form. Lots of love
September 13, 2013 at 9:58 am
Thanks Beatrice for always being there with your kind comments.
September 12, 2013 at 10:05 pm
Sue, I just read your blog and don’t know what to write. I really do hope you get to do all the things that are uppermost in your mind. Sending you much love, Karen
September 13, 2013 at 9:57 am
Thanks Karen for thinking of me – I have a list of things to do which I’m determined to get through! x
September 13, 2013 at 11:14 am
Dear Sue, I heard from Cigdem your news and wish I could say or do anything to make things better. Pete and I have been thinking of you, Alistair, Anna and Seb. Sending you all our love, Mel and Pete xxx
September 14, 2013 at 10:30 am
Thanks for thinking of me, Mel x
September 13, 2013 at 1:26 pm
Sue, I am very stunned – very hard to take in hard news like this. I am quite sure that you (both) will tackle it in your usual good humoured and stoical way….But must be devastating.
I was going to write to see if we can get together – I have a couple of writing projects I’d like some thoughts from you on.
Can I see you again on a visit to Brighton please?
No hurry.
Thinking of you
Judith x
September 14, 2013 at 10:31 am
I’d love to see you in Brighton – Oct v full – Nov more likely, all going well with health. x
September 13, 2013 at 2:07 pm
I am very sorry to hear your news. What you did not say was even more evocative that what you wrote. My training and experience are in public health, not medicine, but I am surprised that you were not offered treatment options.
I wish you the very best, and I am optimistic that you will complete a very long “to do” list.
Thanks for sharing this with us.
September 14, 2013 at 10:30 am
Thanks for getting in touch, Gray. Treatment options were discussed but there aren’t any that wouldn’t reduce my quality of life to an unbearable level and none would stop the disease. I hope, too, to complete a very long “to do” list! Thanks for your optimism.
September 13, 2013 at 7:37 pm
Sue, this is very shocking and must be such a huge thing for you all to absorb, am so sorry to hear it.
September 14, 2013 at 10:27 am
Thanks for your thoughts, Kate x
September 13, 2013 at 9:43 pm
Hello Sue, have just discovered this gem on the web! Fascinating. I’d love to come down to see you sometime although I will be at BMS in November. Treat yourself to lovely things and do not let the ‘bugger’ get the better of you. All love Jonathan
September 14, 2013 at 10:27 am
I will hopefully see you at the conference at BSMS in Nov – I am certainly taking the treating myself option seriously! x
September 30, 2013 at 7:43 pm
Dear Sue,
I’m so very distressed and saddened by this news. I’m a loyal, dedicated Walnut Hill alum, class of ’62, and I can’t continue to read your blog without making this more personal contact. I’ve been reading it for some time, appreciating your humor, honesty, and your clear-eyed relationship to the challenges you’ve been facing right along. Your writing brings me ounces and pounds of strength which I bank for unwanted but probably certain personal challenges in my own future. Thank you for sharing your journey.